PRIMARY CARE
Recommendation 1
Various forms of therapy
Recommendation 1
Genetic testing using comparative genomic hybridization (CGH) microarray and fluorescence in situ hybridization (FISH)Recommendation 1
Genetic testing using comparative genomic hybridization (CGH) microarray and fluorescence in situ hybridization (FISH)Recommendation 1
Supportive Treatment OnlyRecommendation 1
Various forms of therapyRecommendation 1
No specific physicians specialize in this condition but NORD recommends various rare disease clinics. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
None is available, but can sign up to be notified when one becomes availableFollow to receive regular updates to the latest research development on this disease via email newsletter.