PRIMARY CARE
Recommendation 1
Therapy and follow up with specialists as needed
Recommendation 1
Chromosome Microarray, Whole-Exome Sequencing, Cap CNV Analysis, Sybergreen Fluorescent Quantitative PCRRecommendation 1
Chromosome Microarray, Whole-Exome Sequencing, Cap CNV Analysis, Sybergreen Fluorescent Quantitative PCRRecommendation 1
Anti-seizure medication as neededRecommendation 1
Therapy and follow up with specialists as neededRecommendation 1
No specific physicians specialize in this condition but NORD recommends various rare disease clinics. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Follow to receive regular updates to the latest research development on this disease via email newsletter.