PRIMARY CARE
Recommendation 1
Therapy for mental and developmental concerns
Recommendation 1
Genetic testing (FISH) or microarrysRecommendation 1
Genetic testing (FISH) or microarrysRecommendation 1
Therapy for mental and developmental concernsRecommendation 1
No specific phsician is specializing in this condition, NORD recommends various Centers for Rare Diseases. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
One clinical trial currently recruitingFollow to receive regular updates to the latest research development on this disease via email newsletter.