PRIMARY CARE
Recommendation 1
Specialist referrals and therapy
Recommendation 1
Genomic testing methods that determine the copy number of sequences can include chromosomal microarray (CMA) or targeted duplication analysis.Recommendation 1
Genomic testing methods that determine the copy number of sequences can include chromosomal microarray (CMA) or targeted duplication analysis.Recommendation 1
Seizures treated with ASMRecommendation 1
Specialist referrals and therapyRecommendation 1
No specific physicians specialize in this condition but NORD recommends various rare disease clinics. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
Few studies currently recruitingFollow to receive regular updates to the latest research development on this disease via email newsletter.