PRIMARY CARE
Recommendation 1
Specialist referrals and therapy
Recommendation 1
Chromosomal microarray (CMA)Recommendation 1
Chromosomal microarray (CMA)Recommendation 1
Supportive Therapy OnlyRecommendation 1
Specialist referrals and therapyRecommendation 1
No specific physicians specialize in this condition but NORD recommends various rare disease clinics. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Follow to receive regular updates to the latest research development on this disease via email newsletter.