PRIMARY CARE
Recommendation 1
Vision support, PT/OT/ST, educational support
Recommendation 1
Clinical exam and genetic testing for TBX22 mutationsRecommendation 1
Clinical exam and genetic testing for TBX22 mutationsRecommendation 1
Corrective surgeries as neededRecommendation 1
Vision support, PT/OT/ST, educational supportRecommendation 1
No specific physicians specialize in this condition, often managed by pediatrics. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
None are available, but can sign up to be notified when one becomes availableFollow to receive regular updates to the latest research development on this disease via email newsletter.