PRIMARY CARE
Recommendation 1
Specialist referral and dietary restrictions
Recommendation 1
Genetic testingRecommendation 1
Genetic testingRecommendation 1
Supportive Therapy OnlyRecommendation 1
Specialist referral and dietary restrictionsRecommendation 1
Endocrinogy. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Follow to receive regular updates to the latest research development on this disease via email newsletter.