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| Disease found: | Acute Disseminated Encephalomyelitis |
| Current as of: | October 8, 2024 |
| Disease Overview: | A neurological, immune-mediated disorder in which widespread inflammation of the central nervous system damages tissue known as white matter. [more info] |
| Signs and Symptoms: | Symptoms are considered nonspecific and include headache, fever, irritability, fatigue, lethargy and general malaise. [more info] |
| Diagnosis: | Based on the identification of characteristic symptoms, a detailed patient history, thorough clinical evaluation and a variety of specialized tests including imaging techniques such as MRI. [more info] |
| Treatment: | No standard therapy for ADEM has been established. [more info] |
| Clinical Management: | Common therapies include corticosteroids, immunoglobulin (IVIg) therapy or plasmapheresis. [more info] |
| Referral: | Two US-based specialists are: Bielekova, Bibiana, M.D. and Lucchinetti, Claudia F, M.D. [more info]. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health. |
| Clinical Trials: | 3 non-recruting [more info] |