PRIMARY CARE
Recommendation 1
Therapeutic management may require the coordinated efforts of a team of medical professionals.
Recommendation 1
Identification of characteristic symptoms, a detailed patient history, a thorough clinical evaluation, and a variety of specialized tests.Recommendation 1
Identification of characteristic symptoms, a detailed patient history, a thorough clinical evaluation, and a variety of specialized tests.Recommendation 1
The initial treatment is induction therapy, however treatments vary.Recommendation 1
Therapeutic management may require the coordinated efforts of a team of medical professionals.Recommendation 1
~ 200 US-based physicans . Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
~ 1,200 trialsFollow to receive regular updates to the latest research development on this disease via email newsletter.