PRIMARY CARE
Recommendation 1
Symptomatic and supportive
Recommendation 1
Ultrasound and MRIRecommendation 1
Ultrasound and MRIRecommendation 1
Symptomatic and supportiveRecommendation 1
Symptomatic and supportiveRecommendation 1
None currently available. . Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
None currently available.Follow to receive regular updates to the latest research development on this disease via email newsletter.