Primary care
Recommendation 1
Pain management
This information is AI generated and has not yet been reviewed by a specialist physician. AI can make mistakes.
Recommendation 1
Excision of lesions to confirm lipomas, and distribution of lesionsRecommendation 1
Excision of lesions to confirm lipomas, and distribution of lesionsZebraMD is partnering with Ambry Genetics for clinical-grade whole genome testing for rare diseases. Ambry accepts insurance. If you don’t have a physician to order this test, join our referral list and our team will reach out.
Recommendation 1
Supportive, with liposuction showing some symptomatic reliefRecommendation 1
Pain managementRecommendation 1
Pain management. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Follow to receive regular updates to the latest research development on this disease via email newsletter.