PRIMARY CARE
Recommendation 1
Symptomatic
Recommendation 1
Head CT or MRIRecommendation 1
Head CT or MRIRecommendation 1
Replacement therapy for affected pituitary hormones, surgery for CSF rhinorrheaRecommendation 1
SymptomaticRecommendation 1
Neurosurgeon. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
None currently recruiting on clinicaltrials.govFollow to receive regular updates to the latest research development on this disease via email newsletter.