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Disease found: | Evans Syndrome |
Current as of: | October 8, 2024 |
Disease Overview: | Rare disorder in which the body’s immune system produces antibodies that mistakenly destroy red blood cells, platelets and neutrophils. [more info] |
Signs and Symptoms: | Sepsis, severe bleeding (hemorrhaging) episodes, juandice, ulcers, ecchymosis, pallor [more info] |
Diagnosis: | Bone marrow biopsy, additional antibody assays, and computed tomography (CT) scans of the chest, abdomen and pelvis [more info] |
Treatment: | Corticosteroids and IVIg therapy [more info] |
Clinical Management: | Specialist referrals and medication management [more info] |
Referral: | No specific physicians specialize in this condition but NORD recommends various rare disease clinics. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health. |
Clinical Trials: | Various clinical trials still recruiting |