Primary care
Recommendation 1
Treatment is usually reserved for those with a history of bleeding or prior to surgeries or dental procedures. Regular monitoring of Factor XI levels.
This information is AI generated and has not yet been reviewed by a specialist physician. AI can make mistakes.
Recommendation 1
Specific blood tests to measure Factor XI levels and assess the clotting functionRecommendation 1
Specific blood tests to measure Factor XI levels and assess the clotting functionZebraMD is partnering with Ambry Genetics for clinical-grade whole genome testing for rare diseases. Ambry accepts insurance. If you don’t have a physician to order this test, join our referral list and our team will reach out.
Recommendation 1
PreventativeRecommendation 2
recombinant factor XI replacement. AcuteRecommendation 3
TXA for minor bleeds, FFP for more significant bleedsRecommendation 1
Treatment is usually reserved for those with a history of bleeding or prior to surgeries or dental procedures. Regular monitoring of Factor XI levels.Recommendation 1
Center for Blood Disorders, Weill Cornell Medicine, and other treatment centers for hemophilia. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Follow to receive regular updates to the latest research development on this disease via email newsletter.