PRIMARY CARE
Recommendation 1
Medication management
Recommendation 1
Symptoms findings and assocation with spider and tick bitesRecommendation 1
Symptoms findings and assocation with spider and tick bitesRecommendation 1
SteroidsRecommendation 1
Medication managementRecommendation 1
No specific physicians specialize in this condition but NORD recommends various rare disease clinics. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
None is available, but can sign up to be notified when one becomes availableFollow to receive regular updates to the latest research development on this disease via email newsletter.