PRIMARY CARE
Recommendation 1
Surgery for internal physical defects and therapy for behavioral concerns
Recommendation 1
Diagnosed through chromosomal microarray or whole exome sequencingRecommendation 1
Diagnosed through chromosomal microarray or whole exome sequencingRecommendation 1
Supportive Treatment OnlyRecommendation 1
Surgery for internal physical defects and therapy for behavioral concernsRecommendation 1
No specific phsician is specializing in this condition, NORD recommends various Centers for Rare Diseases. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Recommendation 1
None is available, but can sign up to be notified when one becomes availableFollow to receive regular updates to the latest research development on this disease via email newsletter.